Guest Blog from Fibromodem

I live with Fibromyalgia.  Some days I suffer.  Some days I battle.  Some days I triumph.  Some days I lose the fight.  But every day I live with it. 

As someone with an invisible illness, I feel like it’s partly my responsibility to bring awareness to the cause.  Fibro has no known cause, no known cure, and very little about how it operates.  It can devastate a life – the *whole* life.  Relationships with spouses, children, friends. Work performance.  Overall health.  Mental stability.  Everything.  A flare can sap the life out of me in a matter of hours.  Sometimes it takes days to recover. 

And you could look right at me and think that I looked fine.  But like a headache, or sore muscles, or a tummy ache – looks are deceiving. 

The more we bring awareness to the cause, the more research will be funded.  Perhaps, someday, we’ll know much more about it.  But it starts with me.  And you. 

Without further ado, here is the guest blog from Fibromodem:

It’s the last day before the Make Fibromyalgia VISIBLE Thunderclap goes off!

For those who have no idea what I’m talking about: this is NOT a Facebook page or website specific project – so I have been hoping that this will be supported by ALL of us!

I started a(nother) Fibromyalgia Awareness initiative in which I would be honoured if EVERYONE would get involved: it’s called a Thunder Clap.

What is Thunderclap?

Thunderclap is a tool that lets a message be heard by saying it together. When we reach our goal number (which we have!), Thunderclap will share the same message on EVERY supporters’ Twitter and/or Facebook page at the same time! You and others will share the same message together, spreading an idea through Facebook and Twitter that cannot be ignored!

For example:

Clap 1

As of when I wrote this, we have 704 supporters with a potential social reach of 228,394 people.

What is THIS Thunderclap?

clap 2

I don’t know how to turn Facebook purple (like the breast cancer awareness people do with pink), so this Thunderclap is me asking EVERYONE to upload the following cover photo to their own profiles for the entire month of May.

header

The message will be published on every supporters’ Facebook page and/or Twitter feed on May 1st at 12:00 AM EDT. Here’s the world-wide times (yes, I know it’s a small picture — just click on it to enlarge):

time

What Can YOU do to Help?

1. To support the THUNDERCLAP personally, click the link then you can:

  • add more social reach with Twitter or Facebook; and/or
  • promote the THUNDERCLAP by sharing or tweeting.

2. You can promote it on your Facebook page

clap 3

3. You can write a blog post to let all your followers know about the project.

clap 4

4. On May 1st, upload the cover photo to your Facebook page (AND upload your VISIBLE Army picture to your profile photo)

Our goal: to no longer be ignored! Just think…we could be trending in May!

I really hope you jump on board…and I hope this campaign can bring some major awareness!

Many people (and doctors) do not know what it is (or doubt its existence) – it is time to make people aware!

Help take the mystery out of Fibromyalgia, and help spread something more powerful: HOPE!

Please share, tweet, re-blog, etc. Let’s get as much coverage as possible!.

And REMEMBER please:

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2 responses to “Guest Blog from Fibromodem

  1. Gah! I’m sorry I didn’t see this sooner, at least for the tweets (I don’t play with facebook).
    I will tweet the thunderclap tomorrow if I get online.

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